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Publications (original articles or review articles) published in 2021 from OUS - Department of Clinical Neurosciences for Children

38 publications found

Andelic N, Røe C, Tenovuo O, Azouvi P, Dawes H, Majdan M, Ranta J, Howe EI, Wiegers EJA, Tverdal C, Borgen I, Forslund MV, Kleffelgaard I, Dahl HM, Jacob L, Cogné M, Lu J, von Steinbuechel N, Zeldovich M (2021)
Unmet Rehabilitation Needs after Traumatic Brain Injury across Europe: Results from the CENTER-TBI Study
J Clin Med, 10 (5)
DOI 10.3390/jcm10051035, PubMed 33802336

Andersen RD, Genik L, Alriksson-Schmidt AI, Anderzen-Carlsson A, Burkitt C, Bruflot SK, Chambers CT, Jahnsen RB, Jeglinsky-Kankainen I, Kildal OA, Ramstad K, Sheriko J, Symons FJ, Wallin L, Andersen GL (2021)
Pain burden in children with cerebral palsy (CPPain) survey: Study protocol
Paediatr Neonatal Pain, 4 (1), 12-22
DOI 10.1002/pne2.12049, PubMed 35546915

Arfa S, Solvang PK, Berg B, Jahnsen R (2021)
Participation in a rehabilitation program based on adapted physical activities in Norway: a qualitative study of experiences of immigrant parents and their children with disabilities
Disabil Rehabil, 44 (9), 1642-1649
DOI 10.1080/09638288.2021.1907454, PubMed 33826448

Baklund IH, Dammen T, Moum TÅ, Kristiansen W, Duarte DS, Castro-Marrero J, Helland IB, Strand EB (2021)
Evaluating Routine Blood Tests According to Clinical Symptoms and Diagnostic Criteria in Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
J Clin Med, 10 (14)
DOI 10.3390/jcm10143105, PubMed 34300271

Berg AK, Diseth TH, Abrahamsen TG, Halvorsen K, Reinfjell T, Erichsen HC (2021)
Primary antibody deficiency: The impact on the quality of life and mental health of affected children and their parents
Acta Paediatr, 110 (5), 1645-1652
DOI 10.1111/apa.15752, PubMed 33420742

Blichfeldt-AEro SC, Halvorsen S, Trondalen G (2021)
Music therapy in invasive cardiac procedures: Expanded perspective
BRIT. J. MUSIC THER., 13594575211039090
DOI 10.1177/13594575211039090

Brandt AE, Finnanger TG, Hypher RE, Rø TB, Skovlund E, Andersson S, Risnes K, Stubberud J (2021)
Rehabilitation of executive function in chronic paediatric brain injury: a randomized controlled trial
BMC Med, 19 (1), 253
DOI 10.1186/s12916-021-02129-8, PubMed 34724955

Bufteac Gincota E, Jahnsen R, Spinei L, Andersen GL (2021)
Risk Factors for Cerebral Palsy in Moldova
Medicina (Kaunas), 57 (6)
DOI 10.3390/medicina57060540, PubMed 34071238

Christensen JJ, Narverud I, Ruuth M, Heier M, Jauhiainen M, Ulven SM, Bogsrud MP, Kovanen PT, Halvorsen B, Oda MN, Wium C, Retterstøl K, Öörni K, Holven KB (2021)
Children with familial hypercholesterolemia display changes in LDL and HDL function: A cross-sectional study
J Intern Med, 290 (5), 1083-1097
DOI 10.1111/joim.13383, PubMed 34506681

Dahl HM, Andelic N, Løvstad M, Holthe IL, Hestnes M, Diseth TH, Myhre MC (2021)
Epidemiology of traumatic brain injury in children 15 years and younger in South-Eastern Norway in 2015-16. Implications for prevention and follow-up needs
Eur J Paediatr Neurol, 31, 70-77
DOI 10.1016/j.ejpn.2021.02.002, PubMed 33647532

Ellis MJ, Larsen K, Havighurst SS (2021)
Childhood Disintegrative Disorder (CDD): Symptomatology of the Norwegian Patient Population and Parents' Experiences of Patient Regression
J Autism Dev Disord, 52 (4), 1495-1506
DOI 10.1007/s10803-021-05023-7, PubMed 33934283

García-Azorín D, Seeher KM, Newton CR, Okubadejo NU, Pilotto A, Saylor D, Winkler AS, Charfi Triki C, Leonardi M (2021)
Disruptions of neurological services, its causes and mitigation strategies during COVID-19: a global review
J Neurol, 268 (11), 3947-3960
DOI 10.1007/s00415-021-10588-5, PubMed 34021772

Grosch IB, Andresen B, Diep LM, Diseth TH, Möller T (2021)
Quality of life and emotional vulnerability in a national cohort of adolescents living with Fontan circulation
Cardiol Young, 32 (6), 874-882
DOI 10.1017/S1047951121003188, PubMed 34387177

Gulseth E, Urdal A, Andersen MH, Diseth T, Aksnes G, Emblem R, Wæhre A (2021)
High satisfaction on genital self-perception and sexual function in healthy Norwegian male adolescents
J Pediatr Urol, 17 (4), 555.e1-555.e8
DOI 10.1016/j.jpurol.2021.02.015, PubMed 33750647

Hägglund G, Hollung SJ, Ahonen M, Andersen GL, Eggertsdóttir G, Gaston MS, Jahnsen R, Jeglinsky-Kankainen I, Nordbye-Nielsen K, Tresoldi I, Alriksson-Schmidt AI (2021)
Treatment of spasticity in children and adolescents with cerebral palsy in Northern Europe: a CP-North registry study
BMC Neurol, 21 (1), 276
DOI 10.1186/s12883-021-02289-3, PubMed 34253183

Jung A, Orenti A, Dunlevy F, Aleksejeva E, Bakkeheim E, Bobrovnichy V, Carr SB, Colombo C, Corvol H, Cosgriff R, Daneau G, Dogru D, Drevinek P, Vukic AD, Fajac I, Fox A, Fustik S, Gulmans V, Harutyunyan S, Hatziagorou E, Kasmi I, Kayserová H, Kondratyeva E, Krivec U, Makukh H et al. (2021)
Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in Europe
ERJ Open Res, 7 (4)
DOI 10.1183/23120541.00411-2021, PubMed 34984210

Kalleson R, Jahnsen R, Østensjø S (2021)
Exploring participation in family and recreational activities among children with cerebral palsy during early childhood: how does it relate to motor function and parental empowerment?
Disabil Rehabil, 44 (9), 1560-1570
DOI 10.1080/09638288.2021.1894608, PubMed 33749471

Keller M, Brennenstuhl H, Kuseyri Hübschmann O, Manti F, Julia Palacios NA, Friedman J, Yıldız Y, Koht JA, Wong SN, Zafeiriou DI, López-Laso E, Pons R, Kulhánek J, Jeltsch K, Serrano-Lomelin J, Garbade SF, Opladen T, Goez H, International Working Group on Neurotransmitter related Disorders (iNTD), Burlina A, Cortès-Saladelafont E, Fernández Ramos JA, García-Cazorla A, Hoffmann GF, Kiat Hong ST et al. (2021)
Assessment of intellectual impairment, health-related quality of life, and behavioral phenotype in patients with neurotransmitter related disorders: Data from the iNTD registry
J Inherit Metab Dis, 44 (6), 1489-1502
DOI 10.1002/jimd.12416, PubMed 34245036

Kildal E, Stadskleiv K, Boysen ES, Øderud T, Dahl IL, Seeberg TM, Guldal S, Strisland F, Morland C, Hassel B (2021)
Increased heart rate functions as a signal of acute distress in non-communicating persons with intellectual disability
Sci Rep, 11 (1), 6479
DOI 10.1038/s41598-021-86023-6, PubMed 33742078

Klevberg GL, Jahnsen R, Elkjaer S, Zucknick M (2021)
Hand use development in children with unilateral cerebral palsy
Dev Med Child Neurol, 63 (12), 1462-1468
DOI 10.1111/dmcn.14957, PubMed 34152004

Kozlowska K, Sawchuk T, Waugh JL, Helgeland H, Baker J, Scher S, Fobian AD (2021)
Changing the culture of care for children and adolescents with functional neurological disorder
Epilepsy Behav Rep, 16, 100486
DOI 10.1016/j.ebr.2021.100486, PubMed 34761194

Kuseyri Hübschmann O, Horvath G, Cortès-Saladelafont E, Yıldız Y, Mastrangelo M, Pons R, Friedman J, Mercimek-Andrews S, Wong SN, Pearson TS, Zafeiriou DI, Kulhánek J, Kurian MA, López-Laso E, Oppebøen M, Kılavuz S, Wassenberg T, Goez H, Scholl-Bürgi S, Porta F, Honzík T, Santer R, Burlina A, Sivri HS, Leuzzi V et al. (2021)
Insights into the expanding phenotypic spectrum of inherited disorders of biogenic amines
Nat Commun, 12 (1), 5529
DOI 10.1038/s41467-021-25515-5, PubMed 34545092

Kuseyri Hübschmann O, Mohr A, Friedman J, Manti F, Horvath G, Cortès-Saladelafont E, Mercimek-Andrews S, Yildiz Y, Pons R, Kulhánek J, Oppebøen M, Koht JA, Podzamczer-Valls I, Domingo-Jimenez R, Ibáñez S, Alcoverro-Fortuny O, Gómez-Alemany T, de Castro P, Alfonsi C, Zafeiriou DI, López-Laso E, Guder P, Santer R, Honzík T, Hoffmann GF et al. (2021)
Brain MR patterns in inherited disorders of monoamine neurotransmitters: An analysis of 70 patients
J Inherit Metab Dis, 44 (4), 1070-1082
DOI 10.1002/jimd.12360, PubMed 33443316

Larsen SM, Ramstad K, Terjesen T (2021)
Hip pain in adolescents with cerebral palsy: a population-based longitudinal study
Dev Med Child Neurol, 63 (5), 601-607
DOI 10.1111/dmcn.14782, PubMed 33393085

Larsen SM, Terjesen T, Jahnsen RB, Ramstad K (2021)
Recurrent pain in adolescents with cerebral palsy: a longitudinal population-based study
Dev Med Child Neurol, 64 (3), 357-363
DOI 10.1111/dmcn.15040, PubMed 34448501

Magelssen M, Rasmussen M, Wallace S, Førde R (2021)
Priority setting at the clinical level: the case of nusinersen and the Norwegian national expert group
BMC Med Ethics, 22 (1), 54
DOI 10.1186/s12910-021-00623-5, PubMed 33947377

Miklos M, Jahnsen R, Nyquist A, Hanisch H, Girdler S (2021)
"Here we are together, at home you are alone" - social interactions and personal engagement during a group-based rehabilitation program for young adults with disability
Disabil Rehabil, 44 (9), 1631-1641
DOI 10.1080/09638288.2021.1921060, PubMed 34000938

Miklos M, Jahnsen R, Nyquist A, Ullenhag A (2021)
How transactional relations contribute to adaptive developmental outcomes when young people with disabilities participate in specially designed group programs - a scoping review
Scand J Occup Ther, 29 (8), 670-685
DOI 10.1080/11038128.2021.1903989, PubMed 33820493

Nacul L, Authier FJ, Scheibenbogen C, Lorusso L, Helland IB, Martin JA, Sirbu CA, Mengshoel AM, Polo O, Behrends U, Nielsen H, Grabowski P, Sekulic S, Sepulveda N, Estévez-López F, Zalewski P, Pheby DFH, Castro-Marrero J, Sakkas GK, Capelli E, Brundsdlund I, Cullinan J, Krumina A, Bergquist J, Murovska M et al. (2021)
European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe
Medicina (Kaunas), 57 (5)
DOI 10.3390/medicina57050510, PubMed 34069603

Pelletier F, Perrier S, Cayami FK, Mirchi A, Saikali S, Tran LT, Ulrick N, Guerrero K, Rampakakis E, van Spaendonk RML, Naidu S, Pohl D, Gibson WT, Demos M, Goizet C, Tejera-Martin I, Potic A, Fogel BL, Brais B, Sylvain M, Sébire G, Lourenço CM, Bonkowsky JL, Catsman-Berrevoets C, Pinto PS et al. (2021)
Endocrine and Growth Abnormalities in 4H Leukodystrophy Caused by Variants in POLR3A, POLR3B, and POLR1C
J Clin Endocrinol Metab, 106 (2), e660-e674
DOI 10.1210/clinem/dgaa700, PubMed 33005949

Pfeiffer HCV, Wickstrom R, Skov L, Sørensen CB, Sandvig I, Gjone IH, Ygberg S, de Visscher C, Idring Nordstrom S, Herner LB, Hesselmark E, Hedderly T, Lim M, Debes NM (2021)
Clinical guidance for diagnosis and management of suspected Pediatric Acute-onset Neuropsychiatric Syndrome in the Nordic countries
Acta Paediatr, 110 (12), 3153-3160
DOI 10.1111/apa.15875, PubMed 33848371

Similä WA, Nøst TH, Helland IB, Rø TB (2021)
Factors related to educational adaptations and social life at school experienced by young people with CFS/ME: a qualitative study
BMJ Open, 11 (11), e051094
DOI 10.1136/bmjopen-2021-051094, PubMed 34794992

Skaaret I, Steen H, Niratisairak S, Swanson D, Holm I (2021)
Postoperative changes in vertical ground reaction forces, walking barefoot and with ankle-foot orthoses in children with Cerebral Palsy
Clin Biomech (Bristol), 84, 105336
DOI 10.1016/j.clinbiomech.2021.105336, PubMed 33848706

Stadskleiv K, van Walsem MR, Andersen GL, Bergqvist L, Bøttcher L, Christensen K, Heyerdahl D, Hollung SJ, Høye H, Jahnsen R, Klevberg GL, Lindquist B, Passmark H, Rike PO, Rodby-Bousquet E, Alriksson-Schmidt AI (2021)
Systematic Monitoring of Cognition for Adults With Cerebral Palsy-The Rationale Behind the Development of the CPCog-Adult Follow-Up Protocol
Front Neurol, 12, 710440
DOI 10.3389/fneur.2021.710440, PubMed 34630285

Steinhardt F, Dolva AS, Jahnsen R, Ullenhag A (2021)
Exploring two subdimensions of participation, involvement and engagement: A scoping review
Scand J Occup Ther, 29 (6), 441-463
DOI 10.1080/11038128.2021.1950207, PubMed 34242105

Stubberud A, Linde M, Brenner E, Heier M, Olsen A, Aamodt AH, Gravdahl GB, Tronvik E (2021)
Self-administered biofeedback treatment app for pediatric migraine: A randomized pilot study
Brain Behav., 11 (2), e01974
DOI 10.1002/brb3.1974

Tollisen A, Flatø B, Selvaag AM, Aasland A, Ingebrigtsen T, Sagen J, Lerdal A (2021)
Treatment Satisfaction With and Adherence to Disease-Modifying Antirheumatic Drugs in Adult Patients With Juvenile Idiopathic Arthritis
Arthritis Care Res (Hoboken), 73 (2), 221-231
DOI 10.1002/acr.24113, PubMed 31758669

Veiby NCBB, Simeunovic A, Heier M, Brunborg C, Saddique N, Moe MC, Dahl-Jørgensen K, Petrovski G, Margeirsdottir HD (2021)
Retinal venular oxygen saturation is associated with non-proliferative diabetic retinopathy in young patients with type 1 diabetes
Acta Ophthalmol, 100 (4), 388-394
DOI 10.1111/aos.15018, PubMed 34668632